Friday, September 19, 2008

The Results

Today was Leland's VCUG at the hospital. She was such trooper. I was amazed by how strong she was acting. I was trying hard to keep the tears from flowing. [Chuck edit: And not very well.] I was very nervous for my little girl. I wanted so bad to take her place. Chuck did well at keeping her entertained with all the fun "toys" - shoe covers and rubber gloves - that he could find. The staff gave her a teddy bear to help comfort her. She was the most excited that we all got matching bracelets. Leland thought it was funny that her dad was wearing a bracelet too.

She then got to drink the "happy juice" that was going to help her relax. The nurse said it was the child version of Prozac, but would also serve an an amnesiac. Tonight, while putting Leland to bed, she revealed that her memory of the day was not gone. I told her how proud I was of her today being so brave at the hospital. She replied, "I pee-peed on the table. That was so silly!"

Leland was excited to take a ride in the bed. She was still smiles when they laid her on the x-ray table. The medicine would soon kick in.

Chuck went with her to radiology. Since they were taking live x-ray pictures, he got to wear the snazzy vest. [Chuck edit: Yes, I know it looks like we were filming a Cindi Lauper video in there.] They inserted a catheter and filled her bladder with a liquid that shows up black on the x-ray. They moved her into different positions to see if the die went from her bladder backwards up through her urinary tract. Finally, they need he to pee to watch and see if that causes things to go backwards.

She had to pee on the x-ray table with 4 people telling her to do so, staring at her and waiting for her to go. Telling a recently potty trained 3-year old, who knows she is only supposed pee in a potty, to pee on demand on a table could create some issues. Chuck says that she got pretty hysterical and was crying. She finally relaxed and peed all over the table.

Before the appointment this morning, when I was telling Leland about the pictures the Dr was going to take of the inside of her belly, she was sure that they would see rainbows.

Well we didn't see any rainbows, but we did see the dye shoot into her left kidney when she peed. She is positive for reflux. So when she urinates some of the urine spits up into her left kidney. Not good.

We are very lucky that this was found early so we can prevent any damage to her kidney this could cause. We are also grateful that only one kidney is affected. My cousin at 3 1/2 years old (he is now 21) who had reflux to both kidneys had a kidney removed because it was detected too late.

Next week, I will meet with her pediatrician for the game plan. Most of what I have read says that this is something she will probably grow out of (at what age, I'm not sure). Until then she will be on a prophylactic dose of antibiotics to prevent infections. The technician did mention to Chuck that they would probably want to do this test again in just over a year from now.

It took Leland a little while for the medicine to wear off. She was very wobbly when she would try to walk and her eyes were heavy. Luckily there was a TV in her recovery area so we got to watch a little Dora, but mostly the Ryder Cup. Poor girl was very emotional the rest of the day. Every little thing would set off a flood of tears.

It was a very emotionally draining day for all of us. We are so grateful that my Aunt was able to watch Lucy for us while we were at the hospital. I am also so grateful for the great friends who thought to bring us dinner and dessert tonight. Thanks it was very yummy.

12 comments:

  1. Oh Leland, you are SO brave! I am glad you caught it early too. We love you Leland!

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  2. Bless her little heart - she is a trooper. I am sure things will continue to get better for her.

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  3. I'm so glad you guys finally know what has been going on. I know it's been tough, but Leland is so brave! What a great girl.

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  4. Glad everything is going to be ok. Its hard to see your child go through something like that, especially when you don't know exactly what is wrong. But now that you know, and thank goodness it's nothing too serious, you can plan ahead with confidence it will be taken care of :)

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  5. Good going Leland, She looks so little in that big bed.

    I can't wait to see you!!

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  6. Way to go Leland! You are such a brave girl. Hope you feel better soon.

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  7. This is Joan I am finally able to read your blog ( I am at a car dealership in Rochester) Blogs are blocked at school. I am so happy that Leland will begin to feel better and got through the procedure without too much stress. Sounds like that hospital caters to young children. I was also able to catch up on all your Blogging. Wow You are very good about staying up on it.. It will be a memory that will always be cherished when the kids are older. I loved all the pictures from our girls weekend. We really did have a wonderful time. Hopefully we can get together soon. Take care Miss ya Joan

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  8. WOW! What a champ... We are so proud of her. Hope all goes well deciding on the plan with the dr.

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  9. Isn't medical science amazing? Ashley, you really stayed on top of the situation. Leland, you were the perfect little patient. Chuck, this little girl looks more and more like you as the years go by. Thanks for the update.

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  10. So sad but she is such a trooper! Glad we found out what was wrong! The ink in her kidney looks like a reindeer!

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  11. What a great little patient. I hope the "game plan" doesn't involve her being a patient too many times. She is such a cutie!! By the way, Cami and Lindsey out of the blue one day asked me when we could go to Disneyland with Chuck and Ashley. I guess we missed our chance:) We miss you guys!!

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  12. Awww...poor Leland! I'm glad you figured out what the problem is, though. Hopefully all will be well from here on out.

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